Community engagement strategies for genomic studies in Africa: a review of the literature.
Identifieur interne : 000382 ( Main/Exploration ); précédent : 000381; suivant : 000383Community engagement strategies for genomic studies in Africa: a review of the literature.
Auteurs : Paulina Tindana [Ghana] ; Jantina De Vries [Afrique du Sud] ; Megan Campbell [Afrique du Sud] ; Katherine Littler [Royaume-Uni] ; Janet Seeley [Ouganda] ; Patricia Marshall [États-Unis] ; Jennifer Troyer [États-Unis] ; Morisola Ogundipe [Éthiopie] ; Vincent Pius Alibu [Ouganda] ; Aminu Yakubu [Nigeria] ; Michael Parker [Royaume-Uni]Source :
- BMC medical ethics [ 1472-6939 ] ; 2015.
Descripteurs français
- KwdFr :
- MESH :
English descriptors
- KwdEn :
- MESH :
Abstract
Community engagement has been recognised as an important aspect of the ethical conduct of biomedical research, especially when research is focused on ethnically or culturally distinct populations. While this is a generally accepted tenet of biomedical research, it is unclear what components are necessary for effective community engagement, particularly in the context of genomic research in Africa.
DOI: 10.1186/s12910-015-0014-z
PubMed: 25889051
Affiliations:
- Afrique du Sud, Ghana, Nigeria, Ouganda, Royaume-Uni, États-Unis, Éthiopie
- Angleterre, Oxfordshire
- Oxford
- Université d'Oxford
Links toward previous steps (curation, corpus...)
- to stream PubMed, to step Corpus: 000950
- to stream PubMed, to step Curation: 000948
- to stream PubMed, to step Checkpoint: 000948
- to stream Ncbi, to step Merge: 000805
- to stream Ncbi, to step Curation: 000805
- to stream Ncbi, to step Checkpoint: 000805
- to stream Main, to step Merge: 000382
- to stream Main, to step Curation: 000382
Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Community engagement strategies for genomic studies in Africa: a review of the literature.</title><author><name sortKey="Tindana, Paulina" sort="Tindana, Paulina" uniqKey="Tindana P" first="Paulina" last="Tindana">Paulina Tindana</name><affiliation wicri:level="1"><nlm:affiliation>Navrongo Health Research Centre, Ghana Health Service, P.O. Box 114, Navrongo, Ghana. ptindana@gmail.com.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Navrongo Health Research Centre, Ghana Health Service, P.O. Box 114, Navrongo</wicri:regionArea><wicri:noRegion>Navrongo</wicri:noRegion></affiliation></author><author><name sortKey="De Vries, Jantina" sort="De Vries, Jantina" uniqKey="De Vries J" first="Jantina" last="De Vries">Jantina De Vries</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, University of Cape Town, Office J52-16, UCT Centre for Clinical Research, Old Main Building, Groote Schuur Hospital, Observatory, 7925, Cape Town, South Africa. Jantina.devries@uct.ac.za.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Medicine, University of Cape Town, Office J52-16, UCT Centre for Clinical Research, Old Main Building, Groote Schuur Hospital, Observatory, 7925, Cape Town</wicri:regionArea><wicri:noRegion>Cape Town</wicri:noRegion></affiliation></author><author><name sortKey="Campbell, Megan" sort="Campbell, Megan" uniqKey="Campbell M" first="Megan" last="Campbell">Megan Campbell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Psychiatry and Mental Health, University of Cape Town, J-Block, Groote Schuur, Observatory, 7925, Cape Town, South Africa. mm.campbell@uct.ac.za.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Psychiatry and Mental Health, University of Cape Town, J-Block, Groote Schuur, Observatory, 7925, Cape Town</wicri:regionArea><wicri:noRegion>Cape Town</wicri:noRegion></affiliation></author><author><name sortKey="Littler, Katherine" sort="Littler, Katherine" uniqKey="Littler K" first="Katherine" last="Littler">Katherine Littler</name><affiliation wicri:level="1"><nlm:affiliation>Wellcome Trust, Gibbs Building, 215 Euston Road, London, NW1 2BE, UK. k.littler@wellcome.ac.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Wellcome Trust, Gibbs Building, 215 Euston Road, London, NW1 2BE</wicri:regionArea><wicri:noRegion>NW1 2BE</wicri:noRegion></affiliation></author><author><name sortKey="Seeley, Janet" sort="Seeley, Janet" uniqKey="Seeley J" first="Janet" last="Seeley">Janet Seeley</name><affiliation wicri:level="1"><nlm:affiliation>MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe, Uganda. janet.seeley@lshtm.ac.uk.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe</wicri:regionArea><wicri:noRegion>Entebbe</wicri:noRegion></affiliation></author><author><name sortKey="Marshall, Patricia" sort="Marshall, Patricia" uniqKey="Marshall P" first="Patricia" last="Marshall">Patricia Marshall</name><affiliation wicri:level="1"><nlm:affiliation>Department of Bioethics, School of Medicine, Case Western Reserve University, 10900 Euclid Avenue, Cleveland, Ohio, 44106-4976, USA. pam20@case.edu.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Bioethics, School of Medicine, Case Western Reserve University, 10900 Euclid Avenue, Cleveland, Ohio, 44106-4976</wicri:regionArea><wicri:noRegion>44106-4976</wicri:noRegion></affiliation></author><author><name sortKey="Troyer, Jennifer" sort="Troyer, Jennifer" uniqKey="Troyer J" first="Jennifer" last="Troyer">Jennifer Troyer</name><affiliation wicri:level="1"><nlm:affiliation>National Human Genome Research Institute, National Institute of Health, Bethesda, USA. troyerj@mail.nih.gov.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>National Human Genome Research Institute, National Institute of Health, Bethesda</wicri:regionArea><wicri:noRegion>Bethesda</wicri:noRegion></affiliation></author><author><name sortKey="Ogundipe, Morisola" sort="Ogundipe, Morisola" uniqKey="Ogundipe M" first="Morisola" last="Ogundipe">Morisola Ogundipe</name><affiliation wicri:level="1"><nlm:affiliation>West African Bioethics Training Program, Center for Bioethics, 102 Bashorun Road, Ibadan, Oyo, State. morisola.ogundipe@westafricanbioethics.net.</nlm:affiliation><country wicri:rule="url">Éthiopie</country></affiliation></author><author><name sortKey="Alibu, Vincent Pius" sort="Alibu, Vincent Pius" uniqKey="Alibu V" first="Vincent Pius" last="Alibu">Vincent Pius Alibu</name><affiliation wicri:level="1"><nlm:affiliation>College of Natural Sciences, Department of Biochemistry and Sports Science, Makerere University, P.O. BOX 7062, Kampala, Uganda. vpalibu@yahoo.com.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>College of Natural Sciences, Department of Biochemistry and Sports Science, Makerere University, P.O. BOX 7062, Kampala</wicri:regionArea><wicri:noRegion>Kampala</wicri:noRegion></affiliation></author><author><name sortKey="Yakubu, Aminu" sort="Yakubu, Aminu" uniqKey="Yakubu A" first="Aminu" last="Yakubu">Aminu Yakubu</name><affiliation wicri:level="1"><nlm:affiliation>National Health Research Ethics Committee, Federal Ministry of Health, Abuja, Nigeria. yaminads@yahoo.com.</nlm:affiliation><country xml:lang="fr">Nigeria</country><wicri:regionArea>National Health Research Ethics Committee, Federal Ministry of Health, Abuja</wicri:regionArea><wicri:noRegion>Abuja</wicri:noRegion></affiliation></author><author><name sortKey="Parker, Michael" sort="Parker, Michael" uniqKey="Parker M" first="Michael" last="Parker">Michael Parker</name><affiliation wicri:level="4"><nlm:affiliation>The Ethox Centre, University of Oxford, Oxford, UK. michael.parker@ethox.ox.ac.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>The Ethox Centre, University of Oxford, Oxford</wicri:regionArea><placeName><settlement type="city">Oxford</settlement><region type="country">Angleterre</region><region type="comté" nuts="2">Oxfordshire</region></placeName><orgName type="university">Université d'Oxford</orgName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2015">2015</date><idno type="RBID">pubmed:25889051</idno><idno type="pmid">25889051</idno><idno type="doi">10.1186/s12910-015-0014-z</idno><idno type="wicri:Area/PubMed/Corpus">000950</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000950</idno><idno type="wicri:Area/PubMed/Curation">000948</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000948</idno><idno type="wicri:Area/PubMed/Checkpoint">000948</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000948</idno><idno type="wicri:Area/Ncbi/Merge">000805</idno><idno type="wicri:Area/Ncbi/Curation">000805</idno><idno type="wicri:Area/Ncbi/Checkpoint">000805</idno><idno type="wicri:Area/Main/Merge">000382</idno><idno type="wicri:Area/Main/Curation">000382</idno><idno type="wicri:Area/Main/Exploration">000382</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Community engagement strategies for genomic studies in Africa: a review of the literature.</title><author><name sortKey="Tindana, Paulina" sort="Tindana, Paulina" uniqKey="Tindana P" first="Paulina" last="Tindana">Paulina Tindana</name><affiliation wicri:level="1"><nlm:affiliation>Navrongo Health Research Centre, Ghana Health Service, P.O. Box 114, Navrongo, Ghana. ptindana@gmail.com.</nlm:affiliation><country xml:lang="fr">Ghana</country><wicri:regionArea>Navrongo Health Research Centre, Ghana Health Service, P.O. Box 114, Navrongo</wicri:regionArea><wicri:noRegion>Navrongo</wicri:noRegion></affiliation></author><author><name sortKey="De Vries, Jantina" sort="De Vries, Jantina" uniqKey="De Vries J" first="Jantina" last="De Vries">Jantina De Vries</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medicine, University of Cape Town, Office J52-16, UCT Centre for Clinical Research, Old Main Building, Groote Schuur Hospital, Observatory, 7925, Cape Town, South Africa. Jantina.devries@uct.ac.za.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Medicine, University of Cape Town, Office J52-16, UCT Centre for Clinical Research, Old Main Building, Groote Schuur Hospital, Observatory, 7925, Cape Town</wicri:regionArea><wicri:noRegion>Cape Town</wicri:noRegion></affiliation></author><author><name sortKey="Campbell, Megan" sort="Campbell, Megan" uniqKey="Campbell M" first="Megan" last="Campbell">Megan Campbell</name><affiliation wicri:level="1"><nlm:affiliation>Department of Psychiatry and Mental Health, University of Cape Town, J-Block, Groote Schuur, Observatory, 7925, Cape Town, South Africa. mm.campbell@uct.ac.za.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Psychiatry and Mental Health, University of Cape Town, J-Block, Groote Schuur, Observatory, 7925, Cape Town</wicri:regionArea><wicri:noRegion>Cape Town</wicri:noRegion></affiliation></author><author><name sortKey="Littler, Katherine" sort="Littler, Katherine" uniqKey="Littler K" first="Katherine" last="Littler">Katherine Littler</name><affiliation wicri:level="1"><nlm:affiliation>Wellcome Trust, Gibbs Building, 215 Euston Road, London, NW1 2BE, UK. k.littler@wellcome.ac.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Wellcome Trust, Gibbs Building, 215 Euston Road, London, NW1 2BE</wicri:regionArea><wicri:noRegion>NW1 2BE</wicri:noRegion></affiliation></author><author><name sortKey="Seeley, Janet" sort="Seeley, Janet" uniqKey="Seeley J" first="Janet" last="Seeley">Janet Seeley</name><affiliation wicri:level="1"><nlm:affiliation>MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe, Uganda. janet.seeley@lshtm.ac.uk.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>MRC/UVRI Uganda Research Unit on AIDS, P.O. Box 49, Entebbe</wicri:regionArea><wicri:noRegion>Entebbe</wicri:noRegion></affiliation></author><author><name sortKey="Marshall, Patricia" sort="Marshall, Patricia" uniqKey="Marshall P" first="Patricia" last="Marshall">Patricia Marshall</name><affiliation wicri:level="1"><nlm:affiliation>Department of Bioethics, School of Medicine, Case Western Reserve University, 10900 Euclid Avenue, Cleveland, Ohio, 44106-4976, USA. pam20@case.edu.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Bioethics, School of Medicine, Case Western Reserve University, 10900 Euclid Avenue, Cleveland, Ohio, 44106-4976</wicri:regionArea><wicri:noRegion>44106-4976</wicri:noRegion></affiliation></author><author><name sortKey="Troyer, Jennifer" sort="Troyer, Jennifer" uniqKey="Troyer J" first="Jennifer" last="Troyer">Jennifer Troyer</name><affiliation wicri:level="1"><nlm:affiliation>National Human Genome Research Institute, National Institute of Health, Bethesda, USA. troyerj@mail.nih.gov.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>National Human Genome Research Institute, National Institute of Health, Bethesda</wicri:regionArea><wicri:noRegion>Bethesda</wicri:noRegion></affiliation></author><author><name sortKey="Ogundipe, Morisola" sort="Ogundipe, Morisola" uniqKey="Ogundipe M" first="Morisola" last="Ogundipe">Morisola Ogundipe</name><affiliation wicri:level="1"><nlm:affiliation>West African Bioethics Training Program, Center for Bioethics, 102 Bashorun Road, Ibadan, Oyo, State. morisola.ogundipe@westafricanbioethics.net.</nlm:affiliation><country wicri:rule="url">Éthiopie</country></affiliation></author><author><name sortKey="Alibu, Vincent Pius" sort="Alibu, Vincent Pius" uniqKey="Alibu V" first="Vincent Pius" last="Alibu">Vincent Pius Alibu</name><affiliation wicri:level="1"><nlm:affiliation>College of Natural Sciences, Department of Biochemistry and Sports Science, Makerere University, P.O. BOX 7062, Kampala, Uganda. vpalibu@yahoo.com.</nlm:affiliation><country xml:lang="fr">Ouganda</country><wicri:regionArea>College of Natural Sciences, Department of Biochemistry and Sports Science, Makerere University, P.O. BOX 7062, Kampala</wicri:regionArea><wicri:noRegion>Kampala</wicri:noRegion></affiliation></author><author><name sortKey="Yakubu, Aminu" sort="Yakubu, Aminu" uniqKey="Yakubu A" first="Aminu" last="Yakubu">Aminu Yakubu</name><affiliation wicri:level="1"><nlm:affiliation>National Health Research Ethics Committee, Federal Ministry of Health, Abuja, Nigeria. yaminads@yahoo.com.</nlm:affiliation><country xml:lang="fr">Nigeria</country><wicri:regionArea>National Health Research Ethics Committee, Federal Ministry of Health, Abuja</wicri:regionArea><wicri:noRegion>Abuja</wicri:noRegion></affiliation></author><author><name sortKey="Parker, Michael" sort="Parker, Michael" uniqKey="Parker M" first="Michael" last="Parker">Michael Parker</name><affiliation wicri:level="4"><nlm:affiliation>The Ethox Centre, University of Oxford, Oxford, UK. michael.parker@ethox.ox.ac.uk.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>The Ethox Centre, University of Oxford, Oxford</wicri:regionArea><placeName><settlement type="city">Oxford</settlement><region type="country">Angleterre</region><region type="comté" nuts="2">Oxfordshire</region></placeName><orgName type="university">Université d'Oxford</orgName></affiliation></author></analytic><series><title level="j">BMC medical ethics</title><idno type="eISSN">1472-6939</idno><imprint><date when="2015" type="published">2015</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Africa</term><term>Community Participation</term><term>Community-Based Participatory Research</term><term>Community-Institutional Relations</term><term>Genetic Research (ethics)</term><term>Genomics</term><term>Humans</term><term>Residence Characteristics</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Afrique</term><term>Caractéristiques de l'habitat</term><term>Génomique</term><term>Humains</term><term>Participation communautaire</term><term>Recherche génétique (éthique)</term><term>Recherche participative basée sur la communauté</term><term>Relations communauté-institution</term></keywords><keywords scheme="MESH" qualifier="ethics" xml:lang="en"><term>Genetic Research</term></keywords><keywords scheme="MESH" qualifier="éthique" xml:lang="fr"><term>Recherche génétique</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Africa</term><term>Community Participation</term><term>Community-Based Participatory Research</term><term>Community-Institutional Relations</term><term>Genomics</term><term>Humans</term><term>Residence Characteristics</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Afrique</term><term>Caractéristiques de l'habitat</term><term>Génomique</term><term>Humains</term><term>Participation communautaire</term><term>Recherche participative basée sur la communauté</term><term>Relations communauté-institution</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Community engagement has been recognised as an important aspect of the ethical conduct of biomedical research, especially when research is focused on ethnically or culturally distinct populations. While this is a generally accepted tenet of biomedical research, it is unclear what components are necessary for effective community engagement, particularly in the context of genomic research in Africa.</div></front></TEI><affiliations><list><country><li>Afrique du Sud</li><li>Ghana</li><li>Nigeria</li><li>Ouganda</li><li>Royaume-Uni</li><li>États-Unis</li><li>Éthiopie</li></country><region><li>Angleterre</li><li>Oxfordshire</li></region><settlement><li>Oxford</li></settlement><orgName><li>Université d'Oxford</li></orgName></list><tree><country name="Ghana"><noRegion><name sortKey="Tindana, Paulina" sort="Tindana, Paulina" uniqKey="Tindana P" first="Paulina" last="Tindana">Paulina Tindana</name></noRegion></country><country name="Afrique du Sud"><noRegion><name sortKey="De Vries, Jantina" sort="De Vries, Jantina" uniqKey="De Vries J" first="Jantina" last="De Vries">Jantina De Vries</name></noRegion><name sortKey="Campbell, Megan" sort="Campbell, Megan" uniqKey="Campbell M" first="Megan" last="Campbell">Megan Campbell</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Littler, Katherine" sort="Littler, Katherine" uniqKey="Littler K" first="Katherine" last="Littler">Katherine Littler</name></noRegion><name sortKey="Parker, Michael" sort="Parker, Michael" uniqKey="Parker M" first="Michael" last="Parker">Michael Parker</name></country><country name="Ouganda"><noRegion><name sortKey="Seeley, Janet" sort="Seeley, Janet" uniqKey="Seeley J" first="Janet" last="Seeley">Janet Seeley</name></noRegion><name sortKey="Alibu, Vincent Pius" sort="Alibu, Vincent Pius" uniqKey="Alibu V" first="Vincent Pius" last="Alibu">Vincent Pius Alibu</name></country><country name="États-Unis"><noRegion><name sortKey="Marshall, Patricia" sort="Marshall, Patricia" uniqKey="Marshall P" first="Patricia" last="Marshall">Patricia Marshall</name></noRegion><name sortKey="Troyer, Jennifer" sort="Troyer, Jennifer" uniqKey="Troyer J" first="Jennifer" last="Troyer">Jennifer Troyer</name></country><country name="Éthiopie"><noRegion><name sortKey="Ogundipe, Morisola" sort="Ogundipe, Morisola" uniqKey="Ogundipe M" first="Morisola" last="Ogundipe">Morisola Ogundipe</name></noRegion></country><country name="Nigeria"><noRegion><name sortKey="Yakubu, Aminu" sort="Yakubu, Aminu" uniqKey="Yakubu A" first="Aminu" last="Yakubu">Aminu Yakubu</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/SidaGhanaV1/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000382 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000382 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Sante
|area= SidaGhanaV1
|flux= Main
|étape= Exploration
|type= RBID
|clé= pubmed:25889051
|texte= Community engagement strategies for genomic studies in Africa: a review of the literature.
}}
Pour générer des pages wiki
HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i -Sk "pubmed:25889051" \
| HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd \
| NlmPubMed2Wicri -a SidaGhanaV1
| This area was generated with Dilib version V0.6.31. |  |